Chiari I hate you!

Yes, I do HATE chiari and what it does. AshLynn struggles ENOUGH. Her Chiari causes her headaches and pain. Along with the headaches it is pushing on nerves that involve her throat. So breathing affected. She also has Laryngomalicia that looks like she will also need surgery for. :( Im a sad mama. Yesterday the ENT we saw said she is having horrible acid reflux that we need to address with meds. I hate the idea of meds but we need to do what is best for her. He wants to see her again in 6 weeks to see how the meds are working. He also wants a sleep study done in 4 weeks to see how her breathing is during the night. I am very over whelmed by all the new. I thought her LM was gone but due to the reflux its no better then it was at 4/5 months old. Here we go with lots of hospital apts.

AshLynn getting scoped this is her 4th scope in her not even 3 years of life.