Yay! AshLynn will she the dr who specializes in Chiari Malformation. It is now the time we fight for tricare to approve her surgery by a chiari dr not just a Neurosurgeon. We will meet with him the 16th of oct. I liked what a friend said we pray for a miracle with out surgery but if that miracle need to come by surgery then let it. AshLynn has been doing really good on a limited gluten diet. Her rashes have almost all gone away. This past week we have had more gluten so the rash on her face is back. So I am hoping to get to the store to get her bread. I am also hoping that we will have another MRI done it's been a few months and see if the malformation has stopped growing. She has had less headaches too!!! That is a wonderful thing! She is sleeping better now that we gave her a pillow. She may not stay on it but helps.
I don't know what our future hold but chiari will not hold AshLynn back.
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