Well...... I know many of you are praying for AshLynn and that things will get better for her. I will word this as best as I can. AshLynn has a medical condition that is causing her brain to grow down into her spine. About 5% of the world has this condition though many more may have it and be miss diagnosed or they have no symptoms. Chiari Malformation type 1 is what AshLynn has while her symptoms are mild to others she is only 16m and must live with this her whole life. When I found out I was pregnant with her I imagined a young girl as myself running on a field kicking a ball past a goalie. I imagined her playing tball with friends. While she might be able to do some of these sport she might not be able to do to the chiari. It breaks my heart to see such a sweet soul in pain each day. I hurt knowing that I could lose her. I cry about it. I fear that we might make the wrong decision for her and cause her more pain. She is just a baby. Why? I am sad to report that yesterday's MRI reviled what we feared. She has blockage of the spinal fluid and its pushing on things it shouldn't be. We started this chiari journey at 5mm and now are 10mm. While that doesn't seem like much to those who don't know what it is for CM it is in such a short time. The dr had hoped that with AshLynn growing that it would not change with her growth. So now we pray. We will be making a neurosurgery apt ASAP as well as an allergy apt. Feeling a bit over whelmed.
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